Jason Bobe Biography

Jason Bobe works on prototyping collaborative and participatory models of research and citizen science. With a focus on (a) greatly expanding the rates of participation in organized health research (b) broadening the types of contributions participants in research are able to make (c) promoting discovery & engagement through participant-centered research design. The focus of my research is prototyping collaborative and participatory models of biomedical research and innovation. Since 2007 I have been working closely with George Church at Harvard to develop the Global Network of Personal Genome Projects (PGP) which includes research studies in 4+ countries that collaborate on the development and evaluation personal genomic technologies and practices at increasing scales. The first site was founded at Harvard Medical School in 2005 followed by sites at Hospital for Sick Kids / University Toronto (2012) University College London (2013) and the Center for Molecular Medicine CeMM in Vienna Austria (2014). I have co-founded a variety of initiatives organizations and programs including: PersonalGenomes.org OpenHumans.org DIYbio.org GETconference.org

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